I know they say dairy is a good source of calcium but we are not cows and cant absorbe or digest soemthing that is meant for young calves. Im going to stop taking Alendronic acid. I also have had a bone scan pre drugs so it would be interesting to find out when I can have another scan to see whether there is an improvement or at least no further loss apart from normal degeneration of bone. . I have gone downhill and increased weight. The PA was baffled. Thank you for your comment. Hospital Dec 2007 Spine-2.9 Hip-1.2. From day one my tummy was not happy & after 8 weeks I suddenly became severely constipated (Literally overnight !!!) Our Story; Links to Network; News; Team; Services; Join the Team; Dont freeze it but keep it at room temperature between 15-30C. Its such a dilemma. My memory was a little fuzzy. It starts after some seemingly minor jaw trauma, but jaw osteonecrosis can quickly decimate a jawbone. Get the link to download App. Its now Friday and still feeling joint pain all over my back, its lessened but it seems to have moved from my right to left side? I am also diabetic 2 (no drugs diet only) coeliac (wheat and gluten free. But its come to my attention that long term , Im also having episodes of increased heart rate on a regular basis just from walking a short distance. Hi Rowena. There is a phrase called the patient financial profile which is the profit made from an illness or disease or condition without the patient either getting cured or dying. I developed teeth probs just before diagnosis so treatment sounds scary if things are made worse by AA. She is 86. I will never take drugs like yours again. If it is common for headaches, dizzy spells and blackout reportsshouldnt this concern those that live alone, for both GP and patient? This study confirms what Savers have known all along: that bisphosphonates are totally ineffective at preventing fractures. Does anyone know the scientific evidence for Alendronic acid and what it does to the body that makes so many people feel achy and dizzy? You would think that and the fact that in Canada a class action suit was brought against the manufacturers of this drug, would be enough to warrant serious alarm bells. Nothing too spectacular to report. I was, in fact, part of a community of Seroxat users who like me were struggling to understand what had happened to them. Newsletter archive, Data Based Medicine Global Ltd. prunus . My sister and I were diagnosed with Osteoproosis over 5 years ago and we have both been taking Alendronic Acid since. It can worsen the side effects of alendronic acid in your stomach and prevent the drug from working. Im just another person looking for help with my bones, having been told by my doctor that there is no alternative to Alendronic Acid. Alendronic Acid. Take one tablet of alendronic acid 70 mg weekly if youre prescribed brands like Fosamax and Fosavance. Angry moment! Qualitative and quantitative composition. It may put you at risk of jaw bone damage. INDIA'S LARGEST HEALTHCARE PLATFORM. Food, mineral water, and other beverages may interrupt your body from absorbing the medicine. After 2 weeks of no bowel movement ended up at A&E!!! Just dont know what to do for best. Prevention. What else can I do to improve my post.menopausal condition? I feel very tired and my bones are much more painful now. I shall be bringing these reviews to my GPs attention AND a refusal to even take the first dose! I really think the doctors for whatever reason are unable to tell people to eat right and exercise i.e. Oral alendronate 5 or 10 mg/day produces sustained increases in bone mineral density (BMD) in postmenopausal women with or without osteoporosis, in men with primary osteoporosis and in both . We would be very interested in accounts of what happens when people take RxISK reports to doctors. About 3 hours later, I started to feel weird, sort of dizzy. Its harmful if you suddenly stop taking it without a proper assessment from your healthcare provider. She was told her bones were fine but should continue on Alendronic Acid. Is it possible to just stop taking the tablets? This is me! Then, they will assess if youll have to continue taking it or take a break from it by stopping the medication completely. She said for the to call in on monday if there is no improvement. Bisphosphonates are a class of osteoporosis drugs such as Boniva (ibandronate), Fosamax (alendronate), Actonel (risedronate) and Reclast (zoledronic acid). This pain was far worse than the pain I experience withOsteoporosis! I have an appointment at The Royal Dental Practice, Cromwell Road, Dorchster to have two back teeth removed. In the meantime her teeth fell outliterally fell outwhat on earth was happening. This way, youll prevent any irritation in your throat or esophagus. Not sure what i was given 2 years ago but only took it for 4 weeks then came off. The Odteoporosis Society were great adn adviced me to see a specialist. I feel so Ill, but after reading the comments regarding AA, Im not sure, if its the AA causing these problems, Im afraid to take my next one, on Thursday. This can help to prevent broken bones and reduce the need for radiotherapy - a treatment . Twin Research Aug 2005 Spine -2.9 Hip -1.3. GP is arranging for a bone scan . The effects of alendronic acid may occur after 1 month of taking it. This drug is only available for prescription and should be taken with caution. I was able to see a neurologist fairly quickly, and he concurred with my thoughts that it was probably Seroxat clashing with the anti-sickness tablets (metaclopromide) I had taken in September, and therefore a one-off event. the pain in my muscles and bones is unbearable, chills, last I had night sweat, my stomach was bloated, acid reflex and the headache along with my jaw ache wont go away. Without the support of new bone tissues, your bones become more porous and fragile, making you prone to bone fractures. Hospital June 2014 Spine-2.5 Hip -0.9. The wierd thing is that none of my upper teeth seem to have been affected by it. It was so frightening my partner called for an ambulance and I was taken to the local hospital, where they hid me in a side room to let me sit and jerk in private. Most of these side effects do not require medical attention and will resolve gradually over time. I was still a little sore, but improving. The dentist told me there was no possible way the drugs had anything to do with my teeth getting loose, and it was probably just poor dental hygiene, in spite of the fact that I was 56 when these problems STARTED and 63 when I had to give up and pull the last ones. They began to itch the next day, ( I took my 5th dose of medication) and they were slightly better but I called my doctor and got in To the office Friday. I suggested, because of the Seroxat link, that I might be sent to a Seroxat specialist. The strange thing is that as soon as I read: That is exactly the reaction I had years ago to Metoclopramide the anti sickness drug. I was diagnosed with osteoporosis two weeks ago, so I just took one Sunday. This was on top of my usual activity levels. In addition, previous side effects were swellings and wealds all over, itching and bloatedness. My bloods were fairly normal although my Vit D was just within normal. I have recently been prescribed AA and, after researching this drug for its possible side effects and reading your stories, I really do not want to take it! I read its the same Acid in cleaning products! What an awful position to be in! 33% of reviewers reported a positive experience, while 47% reported a negative experience. It is commonly prescribed to treat patients with bone issues like osteoporosis and Pagets disease. Who else out there has a similar story? I will come back in a few weeks and let you guys know if I have any strange side effects. These strange sensations coursing through my body continued for a couple of weeks, but I carried on into December going to the gym, singing in two choirs, building my new life coaching business and generally preparing for Christmas. As a follow up to my earlier post, on Feb 21st 2021, I am still experiencing side effects as a result of the ingestion of 1 biphosphonate Alendronic Acid 70g tablet on Sunday Feb 2nd. I read the leaflet and decided to google. Thank you. I called my doctor and will go in tomorrow morning, even though pain resolved. The food and drug agency should be aware of this severe health risk and compensation for reconstruction of dental work and monies for pain and suffering should be compensated. Withdrawal was so extreme that the longest I ever lasted off the drug was seven weeks, the worst of my life. This medicine is available as a generic drug in oral pill or solution form and under brand names like Fosamax (oral tablet) and Binosto (oral effervescent . I carried on with my normal activities. My story begins in May 2014 when I was 72 and took the first once a week dose of one tablet with a glass of water. I am otherwise healthy and have never taken any meds in my life. amazonamazon I would say) I was suddenly aware of my mouth being transformed into a state where I was unable to move my lips and then my jaw at all. Since taking alendronic, I have had difficulty in running and doing all the workout I was doing. Took AA on Sunday and the next night I was in so much pain, I couldnt move. Taking Prednisone now reduced to 15mg per day and apparently it has accelerated progress of cataracts! Osteoporosis can be prevented. Thus, it helps increase bone density, reduce the risk of bone fractures, and treat osteoporosis. This is a condition that causes your bones to get weaker and be more likely to break. 3 months ago 43 Replies. When i DID start researching, after being on these meds for about a year I decided the risk just wasnt worth the POSSIBLE gain and stopped taking it. The GP has been renewing this prescription although I now read a patient only needs to take for 2 yrs max! Has anyone has this done ? I will not be taking another one! I started taking alendronic acid in January 2009. If I could try these first what would people recommend and . This means that Alendronic Acid/Colecalciferol Mylan was intended to be similar to a 'reference medicine' already authorised in the European Union called Fosavance. I cannot say specifically that they have caused me any problems. What an awful time you are having my sympathy goes out to you. Lately, i have been feeling quite unwell, and after having had all sorts of health checks I have now come to the conclusion that my strange symptoms might be due to Alendronic acid. She sent me to a specialist for a second opinion and he said take it. Suddenly not taking or stopping this medication may cause severe side effects. Now have constant Having read all the above I am going to see my doctor again about this drug. I had to stop immediately and was plunged in to full blown menopause, which has been hell ever since. However, below are early signs of osteoporosis: Please see your doctor if your family has a history of osteoporosis to assess your risk. I have no side effects whatsoever and did not have a problem starting them as my cancer care has been excellent. I asked her how long wil it take for the fosamax to leave my body, and when will this pain stop. When I initially had a bone scan they said Id have another one after three years, Ive never had another one. I hate taking meds and wonder if I should stop Alendronic acid. Ive been on Alendronic acid for a few months now. Even before Fosamax was introduced in 1995 as a superior osteoporosis treatment, jaw osteonecrosis has been linked to the bisphosphonate drug family. I was prescribed in 2003 following a crack in my Femur following a knee replacement and the resulting Dexa scan! thanks for this site. I was going through a traumatic time at age 45 yrs and was diagnosed with hypothyroidism, the menopause and depression all at the same time. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Subscribe to newsletter Went to ER did EKG and blood work. 2023 The Heart & Brain. My Mum had taken Alendronic for 10yrs after breaking her hip. Its bad enough living with PBC and all that entails for the rest of my life, but to go through what all of you good people have gone through NO WAY DANNO! Exercise and healthy food and some good supplements. Once a week at the same time. However for the past couple of months the left lower side of my face has been continuously swollen and my family have finally noticed. Two or three times a week. Anyway, I started to take them three weeks ago and I seem to have been fortunate in that I have had very few side effects but, after reading all these reviews, Im not sure I will carry on as Im fit and healthy with no pain. My worry at the moment is that I need a new crown in my teeth and do not know if this permitted and if I go ahead will it affect the health of my gums. Peripheral neuropathy in the hands and fingers. To my surprise he agreed. I started reading this because after being diagnosed with breast cancer part of my ongoing treatment is Letrozole plus Alendronic Acid. I have an annual blood test at hospital for gluten. It was the most frightening and totally incomprehensible thing to have no control over my limbs at all but as I sit and write this, I realise it has become totally familiar. Postmenopausal osteoporosis. I hope you are ok. Dr David Brownstein has written, and talked on YouTube on this subject. Instead of the exercising I need and want to be doing, my muscles are weakening, my joints ache, my tendons burn and my bones are probably crumbling away. where do I go from here, the last thing I want is dentures !! Never in my life have I read as many horror stories and am dumbfounded that medication like this is still being prescribed. Youre description of whip lash injury describes me. Started on Fosamax l6 years ago. Ive only taken one tablet going to speak to Dr tomorrow. It will slow down the breakdown of bones and support the faster growth of new bones in your body. but from the start have not felt well, stabbing pains dental probs,aching joints,My dentist referred me to a specialist to have 3 teeth removed,but i lost it in the chair so scared ! Exercise, especially lifting weights, helps to maintain healthy bone mass. I had a complete hysterectomy 24 years ago but could not tolerate HRT therefore was susceptible to osteoporosis but I had slipped through the net according to my doctor and only got a dexa scan in August 2017. Hi, my story is very similar but I only found out today that Alendronic Acid has caused my dental problems. Although a diagnosis of osteoporosis is based on the results of your bone density scan, the decision about what treatment you need, if any, is based on a number of other factors including your: age. . September 2020 Diagnosed with PMR & prescribed Prednisolone + ADCAL3D +Alendronic Acid. My advice is dont risk your health when the adverse effects are so clearly documented. I woke up, called my doctor to make sure it was safe to take with a few broken ribs, and I was told yes. Below are essential things that you should know before taking alendronic acid: Tell your doctor if you have any dental implants or any tooth issues before taking alendronic acid. Where do you live Jane hope you dont mind me asking. My lower face is completely swollen on the left side. I am 62, healthy and active. They act by inhibiting osteoclast activity and bone resorption. I should have been warned of this side affect. Hi, Ive just been reading through some of the comments as I too have concerns over Alendronic acid tablets. The doctor put me on ADCAL D3 and alendronic. I was running 2 or 3 times, each week, circuit, bodypump, combat, body pump etc, about 14 hours of workout every week. I am aldo taking Calcio with vitamin-D I wish everybody all the very best and thank you for your feedback. I am a naturally upbeat person, but on Wednesdays when I take this drug my body feels so different, I dont like it. 2 years after that I had a dexa test. Anything more and pressure builds in my head, I feel lightheaded, my ears ring and my muscles jerk happily away by themselves. And yes side effects are happening, muscles ache, jaw aches, I did have an X-ray on my jaw and its fine TG. I was diagnosed with Preliminary Billiary Cholongistis (PBC) in 2021 and am now informed I have osteopenia (May 2022); informed today that a prescription has been left at my chemist for Alendronic Acid to be taken once a week. Im 59 and have a very physical job which involves a lot of walking, and I was told by a clinician when I first started treatment that it cant help the spine anyway! Ive been taking Alendronic Acid and Adcal for just over four years and a couple of times felt that my lower face looked slightly strange, nobody else could really tell and it didnt happen that often. He said the result was impossible and after another Dexa scan Im told I have osteopenia in my hip and spine. I am worried about it as it seems to be getting worse. As a consequence, my Dr prescribed Alendronic Acid 70mg. The NHS Dentist has ben very negative and created time consuming visits which are difficult for me to arrange because I have decreasing mobility because of MS. No one my GP or the dentist recommended by my GP have given me no warning about the serious side effects of having dental extractions while taking Aldronic Acid. As things are at the moment I have a good healthy, natural, milky diet. I appear to be ding well on them so I am told along with calcium and Vit D supplements. It was all around my upper body. Im 62, and fit until I came tumbling of my bicycle 2years ago and damaged my lumbar spine and muscles. Hospital Aug 2017 Spine -2.7 Hip -1.1. For oral liquid medicine, use the dosing syringe to measure one unit (70 mg in 100 ml) of oral solution and take it once a week. The second is absolutely & completely familiar. Not far into the walk (about 20 mins. They are ok and work fine for first few years ! Typically, doctors recommend taking osteoporosis medication for 3-5 years. Ive just discovered that lack of it can be at the root of fatigue, depression, low body temperature, and many other issues. They did prescribe adcal calcium/vit d and felt so ill which I thought was these drugs causing it but it wasnt it is intolerance to calcium which I was told when I had my bone scan is quite common. check your brand of alendronic acid may contain gluten, Dear Jane If you have osteoporosis, bone fractures commonly occur in your: Below are the most common factors that may put you at risk of developing osteoporosis: Youre also at a much higher risk of developing osteoporosis if you have health conditions like: Osteoporosis wont give you any symptoms, but you should visit your doctor if youre in doubt, especially if youre approaching menopausal age. If recommended to be taken twice a day, you should have it during lunchtime and dinnertime. Sister told the doc she intends taking Boron. I also are very intolerant to any meds but my doctor had at last convinced me to trythis and suffice to say I will not be taking any more. Glad Im not alone with these problems,thought i was going mad, hi I had zolondronic infusion no problem ,tablets i cant tolerate so I have hit and missed with them ,I told my consultant and the nurses at the hospital but went unanswered said they would sort it ,five weeks a go I fractured my spine so now Im waiting to see what they going to do Ive been honest with them said i skipped a lot cos I felt sick all the time ,Ive opted for infusion,told them that I did tell them ,but now because Ive fractured my spine Im worried that my bone is bad ,bone density scan and hopefully they will sort infusion out for me .I dont like the tablets,I take vitamin d and c .Im trying to help myself just hope its not too late .wouldnt mind I fell off a ladder about two years ago straight onto my back legs and head fell backwards flat and not a broken bone and I had had a density scan just before the fall. 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